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Frequently Asked Questions

What happens after I complete the online surveys?

Study staff will review the responses and may call you to clarify responses or ask additional questions. If your initial information in the online questionnaire appears to make you a good fit for ETPB studies, you may be asked to complete a phone interview. After completing the phone interview, you may be asked to come to the NIH Clinical Center for an in-person assessment. By participating in this study, you are not obligated to join any other study.

What does it cost to participate?

There is no cost to participate.

Is the study confidential?

Yes, all questionnaire responses, data, and in-person study information are confidential and secure. The data collected for this study has no personal identifiable information. The NIH takes confidentiality of participants very seriously. Your answers are confidential to the extent possible under the law.

What if I lose my username?

Email Us.

How do I answer the questions?

Just click on the questionnaire names to get started.

  • The names of all the questionnaires will be displayed on the screen. You can see which ones you have finished, which ones are in progress and which ones remain to be done. You may answer the questionnaires in any order.
  • The questionnaires have different types of questions for which you will be asked to provide answers. Follow the instructions for each questionnaire. If you have questions or concerns, feel free to let us know.

How do I save my answers?

Click "I'm Finished : Save". If you skipped or missed a question, the computer will prompt you to answer that question. Once the completed questionnaire has been saved, you cannot go back to it.

What if I make a mistake?

There are no right and wrong answers in this study. If you click on a response that you did not intend, simply click on the answer you meant to give. Some questions will accept multiple choices. In that case, click again on the unintended response to "undo" it.

Please Contact Us if you have any questions or concerns.